Desmoid Cum Cura

Cancer with care



Find out all possible information for both patients and loved ones


Contact with fellow sufferers

Read how other people experience dealing with desmoid


Quickly find out what you are entitled to and how to apply for it

Cum Cura as point of contact for people with desmoid

It is immensely important to strive for an optimal quality of life as a desmoid patient. Desmoid CC wants to support and promote this. To this end, we have compiled relevant information and support for patients, loved ones and caregivers. Various testimonials from patients and loved ones are also offered to discover how others cope with the disease. If you would like to help expand this with additional information or testimonials, please do not hesitate to contact us!


Can't see the wood for the trees in the sea of information?

You are not alone and we are here to help!

Both for patients with desmoid tumours and their relatives, we have listed all available information.
Click on one of the buttons below to proceed to the overview platform.

Who are we?

Desmoid Cum Cura is part of the umbrella NPO Cum Cura for patients desmoid tumours, or aggressive fibromatosis.

Our objective is to create a true low-threshold healthcare community for and by patients and those around them. A community that offers support in good and not-so-good times.

Besides providing information about these rare tumours, the association also wants to support three target groups, namely patients, family/neighbours and their (para)medical care providers, in order to facilitate contact between fellow sufferers and improve quality of life. Scientific developments are monitored, translated and disseminated to the target groups.

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